Looks like we’ve made it…

cheersAutism Awareness month has come to an end and I cannot be happier.  I just wasn’t up to it this year.  I was busy being aware of my own child’s needs.

Sometimes you just can’t champion everything, you know?

Sometimes you just have to step back and say “maybe next time”.

We’re on to May.  My favorite month.  Our shared birthday is in May.  My mom is visiting.  I’m going to be in Listen to Your Mother.

I like May. It makes me smile.

Something else that makes me smile?  Welcoming my second blog.  www.debbytorres.com

Everybody’s Boy is not going anywhere.  I just thought that there were certain posts that needed their own home.  Posts not specific to parenting or Autism, mostly.  So going forward those posts will live at the new blog.  You can follow that blog on Facebook as well.  The Facebook Page is also where I’ll share updates on publications, speaking engagements, press stuff.  So if you want to keep up with my work go here and click “like” (I’ll wait).

Oh hi, you’re back.  Now, I hope you’ll take the time to read today’s post.  It’s one I hold dear to my heart.

I posted tonight about my upcoming birthday.  The big 3-5.  I hope you’ll check out the new place (still needs some touch up paint and a few pictures on the walls but we’ll get there).  Have a seat on the folding chairs in the dining room and grab a slice of cold pizza from on top of the pile of boxes. I’m still unpacking. But it already feels like my second home.

Rescued: Twenty-One

terminal-c-newark-airport-security-breachjpg-80e77f32341ac8ed_largeI am fully aware that we are ten days into “Autism Awareness Month” and that I have been completely silent about it.  If you are looking for a post on Autism, this isn’t it.  I’ll probably write something before April is over on that topic, but not today.

This is a post I’ve tried to articulate for several weeks, about something I’ve tried to avoid processing for almost fourteen years.   This is a story of 72 hours that irretrievably changed my life.

When I was twenty-one I had a traumatic experience.  I’ve done a good job of repressing most of the memories and moving on but there are certain scenes of one’s life that time cannot fade.  Memories that crop up in dreams, or at lunch with a friend, or in my solitary walks on the trail when the sun peaks through the trees just right.

I don’t know why or what nuance summons such things, I simply recognize the feeling of dread that washes over me when I realize how small and helpless I am in this world and how reliant I am on the perception of others for my self-worth.

Because, for so long I have not liked myself very much at all.  I’ve felt blinding inferiority about my aptitude, talent, weight and beauty.  I don’t feel special at all.  Not one bit.  And the only thing I want is to feel special.  Hearing about my specialness from others makes me uncomfortable – driven to distract from my very own fraud.

Desperate to be rescued from this self-imposed tariff on self-worth.

It started long before I was 21, but if anything it was cemented in late September of 1999.  The details are not terribly important, and many of them are not clear as only recently have they come back to me.  

In 1999 I was involved with a young man who lived in New York City.  It was one of those whirlwind romances that only a twenty-one year old can have.  I was living in Orlando (where we met) and after months of a long distance relationship, I agreed to travel to New York for a visit.  It was my first trip alone – ever.  I had been on one airplane trip in my life.  The year before I had flown up to NYC to spend time with a friend who was attending West Point.  This time in lieu of LaGuardia I flew into Newark;  I guess I wanted to “see the world” or maybe it was cheaper.  I was feeling very grown up and metropolitan.

Mostly I was too much of a naïve twenty-one year old to think that anything could go wrong.

But it turns out that a lot went wrong on that trip.

The guy picked me up at the Newark airport and we drove for a long while.  He had booked two days in Saratoga Springs in this beautiful mansion overlooking the Mohawk river, it was very fancy and expensive. I remember that the leaves were starting to change and having spent my life in Florida I was enchanted by that – I remember the leaves very clearly.  I focused on the leaves a lot during those almost two days.

I remember other things too.  Bits and pieces that don’t merit writing.  Bits and pieces I am not ready to write.  Suffice to say that there were things I should’ve feared at twenty-one that I had not before.  I cannot say that I was raped, because that conjures a specific image I am not ready to own, but I can say that in retrospect the events of that weekend were egregious enough to have permanently damaged me.  The third day, the day before my return flight, we spent holed up in a run-down motel in Elizabeth, NJ with dirty carpet that smelled like curry.  I did not have enough money for food or a taxi and especially not to change my flight.  I didn’t dare ask for anything from him by then.

At 6:30 the next morning, I was delivered to the airport, a full 14 hours before my scheduled departure, literally willing myself to believe I had been anywhere else for the past 72 hours.  I was stoic and measured as I approached counter to check in for my evening flight.  I think the flight attendant saw more than I could see within me though, because she got me on the very next flight home.

These are the details that are sketchy.  But the image that creeps into my thoughts remains unfaded by the years.

These were the days before you had to go through security, so I took my bag and began walking down the very bright concourse towards my gate.  As I walked I became aware that I could hear these primal gut-wrenching sobs enveloping me.  I became aware that my face was wet, my shirt was wet, the taste in my mouth was salty.  My hands were numb.  And then my legs gave way.

I fell to my hands and knees in absolute despair right there in the Newark airport.  I could not breathe, I could not speak, I could only sob.

It felt like forever, too.  It felt like I lost hours on the floor, even though I know that is not the case.  Perhaps it felt that way because I had lost years in the past 72 hours.  I don’t know.

I just know that I have never felt more unspecial than I did in that moment.

There was a man in a suit, he was a “grown-up”.  In hindsight he was probably younger than I am now, but that’s how I saw him through the haze of the brightly lit concourse and my exhausted contact lenses.

He walked over to me and knelt at my side.  He sat there for a while not saying anything, just kind of patting my back in a really nice “grown-up” kind of way.    After a little while he asked me if he could see my ticket and take my bag.  I was practically catatonic, but I assume I nodded yes because he did.

I followed him and my stuff to what he told me was my gate.  He spent some time talking to the flight attendant at the desk, they nodded, he wrote something down and then he came back to me.  He said “Do you drink Coke?” and I kind of laughed at the absurdity of the question despite my fragile state.  He smiled and told me he’d be right back.

He came back with a Coke and a travel package of tissues and asked me if I’d like to use his cell phone to call someone.  These are the days before cell phones were common, and I had one through my job but I dared not incur the roaming fees.  I called my Mama.  I choked out a little bit, but I also knew I didn’t want to worry her.  Mostly I just told her I was sad and scared and coming home.

Then the stranger asked me if I was going to be okay and I said yes and thank you and I am so sorry.

And he said, “Of course, anytime.  Everything is going to be alright.”

Then he was gone.

He rescued me and then he was gone.

He stopped to talk to the flight attendant again on his way to his gate (if he even made his flight, if he wasn’t too late) and I am almost certain he told her to take care of me and gave her his number if I needed anything.

I don’t even know his name but it was because of him that I made it home.  I wonder if some day he’ll stumble across this blog and remember me and know that I am very grateful that he rescued me?

As I think about the years before and since, I am not all that shocked that this stranger felt I was special enough to warrant rescuing.

I understand that at twenty-one and in trauma I was not capable of being my  own champion.

I don’t know why over the past several months this long repressed event has begun to emerge, I’d rather not remember, but if I have to perhaps it’s because it’s time that I recognize that not only am I special enough to be rescued…

…but that I have the ability to rescue myself.

I can carry my bags.  I can find my gate.  I can fall apart and put myself back together, and I can (and will) buy my own Coke.

Budapest or Bust

I never met my paternal grandparents; they died several years before my birth.  I pieced together snippets of their lives in the way that young children do, comprehending little, listening intermittently.

They were immigrants.  My grandfather came to New York as a child from Sweden.  I don’t remember if he had any siblings.  The men I remember seeing at my father’s funeral might have been uncles or cousins.  I never thought to ask then.  It didn’t really matter.  My father was dead.  What I didn’t realize, nor could’ve comprehended at the  fragile age of 13, was that I lost more than him when that funeral procession ended.  I lost contact with practically everyone with a key to me understanding my history.

My grandfather was a judge, and mayor of a town in the metro-Miami area.   The city named a baseball field after him.   That is literally all I know of him.  My father’s only sister and I write occasionally and I ask her to recall, but her long-term memory is punctured by confusion and anger of being disowned for her sexuality, memories of a tragic car accident which killed her mother, severe epilepsy and harsh medications.

Of all the knowledge that she has lost, I most value extracting the  fragmented memories of her mother.  Because truly, it’s my grandmother’s legacy that intrigues.

My grandmother was an immigrant too.  She came through Ellis Island with her older sister, Ashie-Pattle, and their mother.  They came from Hungary.  Their last name was some variant of Balint, which I understand means Valentine in Hungarian.  One of my earliest memories was my mom talking with Ashie-Pattle about how their mother had returned to Hungary to visit and became trapped when the Iron Curtain fell and how she had died there.

Imagine being six years old.  Now imagine believing that your great-grandmother had been crushed by a metal curtain.  Imagine envisioning her dying under the weight of this curtain.  Would you have asked more questions?  Because I didn’t.  I explored the horror soley in my dreams.  Only to discern years later, as an adult in my early twenties, that the reality was a much less gruesome and yet much more devastating dichotomy.

My Great Aunt Ashie-Pattle lived in town, undoubtedly obliged  to leave New York when she became widowed. The small cottage in rural Florida suited her well enough,   I imagine she felt comfort being close to her sister and her Swedish-judge-mayor-brother-in-law.  She loved watching televised women’s tennis matches , fed me my black coffee when I was nine, kept stockpiles of condensed milk and relied on my mother and I to pick her up and take her to physicians visits and the grocery store.

At some point I learned that she’d has a distinguished career as a professional dancer, travelling and performing with her late husband Ned.  They had toured and danced with Fred Astaire and Ginger Rogers.  She was still limber and petite into her 80′s.  I would beg her to show me dance steps and she did, with unfounded grace.  She always wore her jet-black dyed hair braided  in a bun with red lipstick and pristine polyester suits from the fifties.  She would spend an hour getting ready for a five-minute walk outside.   She was proud.  She was secretive.  My father’s whole family seemed this way.  Possibly more-so because I knew so little.   Like my Aunt Margot, Ashie-Pattle had severe epilepsy but hid it with keen fervor.  Because in her culture epileptics were deemed possessed by the devil and banished to asylums.  She never once mentioned her medications by name.  My mother would have to take doctors aside and show them the pill bottles in secret, because she simply would never speak of it.  She lived this glorious charade until she fell outside the cottage one day, broke her hip and went to live out her remaining days without a dab of lipstick or a shred of dignity in a nursing home where the only thing they payed mind to were her secret pills.  I have to wonder if the stigma she feared was less of being perceived as possessed, and more of being perceived as nothing but “disabled”.  I found a small solace when I recently stumbled upon her archived obituary online, and noted that it listed her solely as “Dancer.”

In 634 words that is essentially all I know of my father’s family.  There are so many secrets I never learned and so many questions about myself, my global identity, that remain unanswered.

In my mid-20′s I sometimes traveled internationally  for work.  It was around this time that I became intent upon making a journey to Hungary.  I thought, “if anything, I will walk the streets of Budapest and sit by the Danube as my ancestors had.  I will walk in the footprints of time and maybe, just maybe, stumble upon the truth.  The truth about my family and the truth about me.”

At that time in my life Budapest also symbolized a coming of age, a coming into independence and adulthood.  In the spring of 2004, I planned to travel alone by train, from a conference I was attending in Vienna, Austria.  I insisted on planning this journey on my own, on seeing it through all by myself.  I needed to do this.  I needed to prove that I could travel internationally on my own, to a country where I shared nothing in common but 1/4 of my blood.

I wondered what it was like to go through Ellis Island as a child, to start over with nothing in New York City and build a new life.  To learn a new language, and get an education, and marry, and have children.  To move to Florida as a mayor’s wife.  To travel the country with the most famous dance troupe of all time.

Surely if they could do that.  I could manage to get off at the right train stop, read a map, and keep myself fed for a few days.

It was so much more than a trip to Budapest.  So very much more.

And at the very last moment; I didn’t go.

In short, I caved to someone elses’ will.  I lacked the self-respect and dignity it would’ve taken to put myself first.

I hated myself for not going for a very long time.  I hated myself for being weak.  I hated myself for letting someone elses’ opinion of my ability overrule what I knew as truth.

I could’ve done it.  I could’ve traveled to Budapest by myself.  I could’ve answered some questions, if not about my ancestry, then at the very least about my own fortitude.

The iron curtain fell and I was on the wrong side of it.

Today I think about Budapest in a more existential way.  It’s not a trip I’d like to make.  It is a journey I must complete.

It is my Ellis Island.

This time, the trip is about fulfilling that coming of age that has and will continue to elude me.

I must go to Budapest and I must go alone.  If I don’t get on the train this time, I will only have myself to blame.

So I’m saving up.  I figure I can put away five dollars a week for the next ten years  and I can find my way back to that train station, back to those crossroads of my symbolic quest for identity.

Only this time, stepping off the train is merely evidence that I’ve already found all the answers I need.

In Between

Nothing much is alive now.

It gets dark at 5 p.m.

There are no weekend activities.

Thanksgiving has passed.

Regardless of what the retail industry would have you believe – Christmas is still a little bit off.

We await the first winter snow with fervor.  Looking for some assertion that it is indeed winter.

It’s the “in between”.

We spend a lot of time in the “in between” these days.

Not quite sure where we fit.

The child with Autism who is verbal, academically advanced, and craves social interaction.

The child, with Autism, who can’t keep up with his typical peers socially and emotionally.

The child – with Autism – who glaringly stands out as he introduces the children on the playground to his “brothers” Toad and Handy Smurf.  As they whisper amongst themselves and snicker.

The child who can’t wait to tell his classmates at school that his Developmental Therapist is coming on Sundays, Mondays and Thursdays now!

The child who woke twice last night from nightmares.

Who begs me to “make it the weekend” every morning as I dress him for school.

Who’s IEP meeting in the next few weeks will celebrate that he has mastered all of his goals in the first quarter of Kindergarten.

The IEP meeting where I will worry that someday – he just might “look” too good for his own good – where he might lose the very supports that keep him in between.

For now – no one is arguing that there are more goals.

It’s just that there will always be more goals.

In between.

It’s a strange place to be.

Sure do wish it would snow.