Checked Baggage

At some point in recent history I decided to take my life back.

I can’t pinpoint when it was.  It wasn’t some epiphanial moment that I will regale young whippersnappers with in my old age.  In fact, it wasn’t a moment at all.  It was the culmination of thousands of moments, and born out of an innate desire for self-preservation.  What’s more is that I’m not “all better.”   I just am.

You have to understand that for some time now I have teetered on the precipice of  shear disaster.

It doesn’t do anyone any good for me to recount publicly the transgressions I’ve encountered in my 34 years.  I imagine I have lived a lot more than some, yet a lot less than others.  What’s important is my reality and how I’ve coped.  Which, depending on where you would rate such encountered transgressions on the “horrible, terrible” scale, is either amazingly horrible or absolutely terrible.   I’d like to believe that experience brought me growth for the most part, with a side of baggage.

Baggage like an eating disorder, an anxiety disorder, post traumatic stress disorder…and possibly some other “disorders” remaining to be unearthed.

Experience also brought me to understand my fragility, and appreciate my strengths.

It’s true that I jump every time I hear an unexpected loud noise.  Or that after 8 years my husband cannot approach me from behind without warning (and even then I still scream bloody murder at least 70 percent of the time).   Yes, I have foods that are “safe” and foods that are “forbidden”, even though the scale said I passed “recovery” about 60 pounds ago.  I chronically apologize for my very existence, always assume that I am wrong in any situation, and have spent much of my life harming myself physically and emotionally.  My anxiety keeps me awake a night, worrying about how I might have failed any number of people, and what egregious acts I might commit in the future.  I need medication to function in this world. Sometimes I cannot find the emotional energy to keep a dinner date with an old friend or put away the laundry that my husband washed and folded and instead find myself taking long afternoon naps seeking respite in a few hours without worry.  Even then, the memories, the anxiety, the fear sneak into my dreams forcing me to reconcile whatever it might be that I’ve fought so hard to cleanly compartmentalize.

It is incredibly lonely and miserable when your mind and body revolt against you.  Especially when you can’t reconcile a purpose.  I believe, at least in part, that I must experience these things because otherwise how could I possibly understand and champion my son?

No one is without gifts, however.  In fact, our weaknesses are often the very same things that help us towards greatness.

This is the realization that I had, when I decided to take my life back.

Without those encountered transgressions I doubt I would hold this passion to save my little piece of the world.

I don’t think I’d have the empathy to embrace another’s story without judgement, the patience to raise a child with Autism in a nurturing environment, the resilience to take continuous hard knocks and keep going, or the resourcefulness to make a path for myself and others.

So there it is, I guess.  There is my non-epiphany.  There is no black and white.  There is no sick or well.  There is only me taking responsibility and control for my very own journey.

There is beauty in dysfunction.  There is dysfunction in beauty.

Whatever it is today or turns out to be;  it is mine.

I took it back.

 

Regular Kid Camp

We are fighting over headphones.

Noise cancelling headphones to be specific.

I cannot find them.  I must find them.  I must attach one of these 25 dollar indestructible camp labels to them rightthisverymoment.

Technically they are supposed to sit for 24 hours to properly affix themselves.

For 25 dollars I think they should do that a lot faster but whatever…that’s not really the issue here.

I cannot find EB’s noise cancelling headphones.  Camp starts tomorrow.

Camp.  That’s right.  Like regular kid camp.

Also, I cannot breathe. 

I wish my meds would kick in.

Gus and I are fighting over headphones.

It goes something like this:

Me:  I cannot find the headphones.  When was the last we had them?  The gym is really loud.  We need to find them right now.

Gus:  The gym isn’t loud.

Me:  You weren’t even there.

Gus:  EB, was the gym at camp loud?

EB:  No.

Gus:  Do you need your headphones?

EB:  No.  I am Darth Vader.

Gus:  He says he doesn’t need them.

Me:  He says he is DarthVader too.  He needs them.  Just in case…

Gus:  Just in case what?  Why do you want him to stand out?  He’ll be the only kid wearing headphones.

Me:  Or he’ll be the only kid freaking out, cause it’s not like that’s never happened before IN A GYM…

Gus:  <Storms out>, I’ll go buy another pair since it’s that important.  

Me:  Bring me some Coke Zero too?

<Slam>

Camp is  the scariest thing ever.  I honestly have no idea how I am going to survive this.  Oh they are wonderful and kind and inclusive.  The city is even providing an inclusion companion for him full time.  Really, it’s a good place.

But the kids.  The kids are scary.

Kids without disabilities scare me to death.  It’s true.  They can be so mean.   Maybe they aren’t even trying to be mean but that’s just how “normal” is?

And normal…we aren’t normal.

He needs this.  He needs the interaction and the social aspect.  He needs the activities and time with other children.  It’s what’s right.

But the only thing that feels right in this moment is to…I don’t know.

Run away to the beach for like ever?  Quit work and stay at home to devote my every minute to orchestrating his social calendar?

Find the headphones?

I suppose we have to find the headphones.  We have to send them.   Just in case.  I have to finish this social story.  Just in case.  I have to laminate a few relaxation schedules.  Just in case.

Because at some point I can’t just keep him attached to my hip.  At some point we all have to face the real world and find our place in it.

Headphones or not.