Monthly Archives: January 2012

January

I cannot wait for January to end. The month of failed mainstreaming and one terribly distressed little boy.  The month we lost SSI/Medicaid.  The month of illnesses,  financial disaster, and so much fruitless fighting. I sat down this morning to … Continue reading

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A picture is worth a thousand words…

We get these amazing opportunities sometimes.  I guess that’s one perk of being so open and “in your face”.  ;-) Starting today, a photo journalism student has begun shadowing EB for a photo documentary.  She came with us this morning … Continue reading

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Battle Fatigue

I keep writing and rewriting this first paragraph. I need to write.  It’s been a while. I need to share.  There’s been a lot. But I’m really tired. Not the “Wow, I could go for a nap, tired.”  Though, there’s … Continue reading

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Breathe. Believe. Begin.

This week “Everybody’s Boy” made an impact.  The Open Letter I posted about Autism insurance reform went”viral”…or at least as viral as anything about Autism insurance reform could go. A dear friend, Clara’s mom, blogged about it on BabyCenter.   Then … Continue reading

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